News & Stories

Meet fellow participants who have undergone mastectomies
Participant Stories Zoey Richards Participant Stories Zoey Richards

Meet fellow participants who have undergone mastectomies

Here are three stories from individuals who underwent genetic testing and were offered mastectomy because, at their level of risk, the potential benefits were thought to outweigh the possible downsides. It’s important to note that there are many strategies available to reduce the risk of breast cancer. We are not advocating for any approach - as these stories show - each person’s journey and decision is unique.

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A New Step in Understanding the Genetics of Breast Cancer and Women’s Health
Research in Focus Zoey Richards Research in Focus Zoey Richards

A New Step in Understanding the Genetics of Breast Cancer and Women’s Health

The Breast Cancer Now Generations Study is now using large-scale DNA sequencing to better understand genetic risk factors for breast cancer and other women’s health conditions. This could lead to improved, more personalised screening and prevention for all women—not just those with a family history. The research meets our rigorous security and privacy standards and is conducted in partnership with Regeneron, a global biomedical research company.

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Collecting information on who has been diagnosed with cancer
Research in Focus Zoey Richards Research in Focus Zoey Richards

Collecting information on who has been diagnosed with cancer

Since the study started in 2004, approximately 4,000 of the 113,000 study participants have reported to us that they have been diagnosed with breast cancer, and 5,000 have been diagnosed with other types of cancer.  Until now, we have relied on your responses through questionnaires or notifications to learn about these cancer diagnoses.  This year, we are introducing a new method to identify cancer diagnoses using the NHS cancer registration system. 

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A 20-year journey: Highlights from the Generations Study
Research in Focus Zoey Richards Research in Focus Zoey Richards

A 20-year journey: Highlights from the Generations Study

The Generations Study is celebrating its 20th anniversary. We want to take this opportunity to thank our participants for their participation and continued support of the study over the past 20 years. Here is a brief highlight of the amazing amount of data that has been collected, some of the important scientific findings and the key questions about breast cancer that we are currently asking.

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